ExoVasc® PEARS
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    EXOVASC®

    The ExoVasc® PEARS provides an alternative to aortic root replacement. A personalised, custom-made external support is made to exactly match the patient’s aorta.

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Useful websites

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Useful websites
There are numerous foundations and associations dedicated to supporting individuals and families affected by Marfan syndrome. These organisations are a valuable source of information and practical and emotional support.

International Federation of Marfan Syndrome Organi

Country

Organisation

Website
Belgium Association Belge du Syndrome de Marfan www.marfan.be
Denmark Danish Marfan Association www.marfan.dk
Finland Finnish Marfan Association www.marfan.fi
France Association Française du Syndrome de Marfan (A.F.S.M.) www.vivremarfan.org
Germany Marfan Hilfe (Deutschland) e.V. www.marfan.de
Japan Marfan Network Japan (MNJ) www.marfan.gr.jp (Japanese only)
Japan Marfan Association (JAMAA) www.marfan.jp
Norway Marfanforeningen co/FFO www.marfan.no
Peru La Asociación Peruana del Síndrome de Marfan (APSIM) marfanperu.org.pe
Poland Polish Marfan Association www.marfan.pl
Slovakia Slovak Marfan Association www.marfan.sk
Spain SIMA Asociación de Afectados Síndrome de Marfan www.marfan.es
Sweden Svenska Marfanföreningen www.marfanforeningen.se
Switzerland Marfan Stiftung Schweiz www.marfan.ch
United Kingdom Marfan Trust www.marfantrust.org
United States Marfan Foundation www.marfan.org

We develop medical devices that manage aortic dilation and minimise the risk of aortic dissection.

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The staff of Exstent Limited are not medically qualified and are thus not able to provide clinical advice or answer questions of a clinical nature. We may direct your attention to publications in peer-reviewed journals that provide clinical information or provide information based upon personal experience. However, for any questions of a clinical nature patients are recommended to consult a qualified clinician.
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