Websites

There are numerous foundations and associations dedicated to supporting individuals and families affected by Marfan syndrome. These organisations are a valuable source of information and practical and emotional support.

International Federation of Marfan Syndrome Organizations (IFMSO)

www.marfanworld.org

National Patient Organisations

 

Country

Organisation

Website

Victoria, Australia Marfan Association Victoria Inc. www.marfanvic.org.au
Belgium Association Belge du Syndrome de Marfan www.marfan.be
Brazil The Fundação Marfan Brasil – (Brasil Marfan Foundation www.marfan.com.br/
Denmark Danish Marfan Association www.marfan.dk
Finland Finnish Marfan Association www.marfan.fi
France Association Française du Syndrome de Marfan (A.F.S.M.) www.vivremarfan.org
Germany Marfan Hilfe (Deutschland) e.V. www.marfan.de
Ireland Marfan Syndrome Support Group Ireland, Ltd www.marfan.ie
Italy Associazione Vittorio www.marfan.info
Japan Marfan Network Japan (MNJ) www.marfan.gr.jp
(Japanese only)
Japan Marfan Association (JAMAA) www.marfan.jp
Mexico Sindrome de Marfan de Mexico A.C. www.marfan.org.mx
Netherlands Contactgroep Marfan Nederland www.shhv.nl
Norway Marfanforeningen co/FFO www.marfan.no
Peru La Asociación Peruana del Síndrome de Marfan (APSIM) marfanperu.org.pe
Poland Polish Marfan Association www.marfan.pl
Slovakia Slovak Marfan Association www.marfan.sk
Spain SIMA Asociación de Afectados Síndrome de Marfan www.marfan.es
Sweden Svenska Marfanföreningen www.marfanforeningen.se
Switzerland Marfan Stiftung Schweiz www.marfan.ch
United Kingdom Marfan Association UK www.marfan-association.org.uk
United States Marfan Foundation www.marfan.org